Patient Society Village

Date: Friday, 15.9.2017
Time: 10:00-16:30
Location: Lobby outside of Rooms A&B

The Patient Society Village invites all Congress delegates to discuss their valuable work. This is a superb opportunity to garner a better understanding of patients’ needs within your craft.

The EADV will offer two coffee breaks throughout the day; take a few minutes to join these organisations for a conversation and a croissant.

This year we will be marking a new design to our Patient Society Village. Taking place on 15 September, the Patient Society Village will welcome the following Patient Organisations from Europe and the rest of the world:

  • Association Française du Vitiligo
  • Association Pemphigus Pemphigoïde France
  • Association Tunisienne “Aide aux Enfants Atteints de Xeroderma Pigmentosum”
  • Cutaneous Lymphoma Foundation
  • European Federation of Allergy and Airways Diseases Patients’ Associations
  • European Patients Academy on Therapeutic Innovation
  • France Psoriasis
  • Global Allergy & Asthma Patient Platform
  • Global Alliance for Patient Access
  • Hidradenitis Patiënten Vereniging
  • Huidpatiënten Nederland – Dutch Skin Patients Federation
  • International Alliance of Dermatology Patient Organizations
  • International Federation of Psoriasis Associations
  • Schweizerische Psoriasis und Vitiligo Gesellschaft
  • The European Umbrella Organisation for Psoriasis Movements


Patient Organisations Session: Changing the Way the World Perceives Dermatology

Time: September 15, 8:30-10:00 am

Description: Before the opening of the opening of the Patient Society Village, the EADV is working with the IADPO to present a session for patient organisation representatives, Congress delegates and other stakeholders. The session is open for all congress attendees.

Dermatological conditions are not taken seriously as the debilitating, chronic conditions they so often are. What is the impact of this on patients, dermatologists, nurses and researchers? Join us for an innovative, interactive 90-minute dialogue session on the big challenges in dermatology – today and tomorrow.

Format:  Panel presentations (three minutes each) and moderated discussion, followed by round table discussions and group reporting.


  • To explore ways to increase the visibility of and respect for dermatological disease
  • To see how we (patients, dermatologists, nurses and researchers) can join forces
  • To formulate what impact this change would have on future funding for patient support, care and dermatological research.

Schedule & Programme:

Welcome and introductions – Catherine van Montfrans, EADV & Christine Janus, IADPO (5 minutes)

Panel Presentations – café style (20 minutes)

  1. Dr. Signe Fogel, Researcher University of Aarhus (DM)
    Focus: Patients perspective on a multidsciplinary approach
  2. Prof. Matthias Augustin,  dermatologist University of Hamburg (GE)
    Focus: GRIDD
  3. Prof. Pierre Wolkenstein , dermatologist EADV Working Group
    Focus: Rare Diseases
  4. Jean-Marie Meurant, President, IADPO and and l’Association Française du Vitiligo
    Focus: Objectif Peau project

Round table discussions – 6 people/table x 8 tables (20 minutes)

Break to change tables (5 minutes)

Round table discussions – 6 people/table x 8 tables (20 minutes)

Rapporteurs report back to session attendees (15 minutes)

Concluding remarks – Catherine van Montfrans, EADV & Christine Janus, IADPO (5 minutes)


If you are a patient organisation that is interested in participating in the Patient Society Village at our Congress in Geneva, Switzerland, please download the form, fill it out and return it to Christopher Horstkamp ( Please contact Christopher if you have any questions or feedback.

Click here to download the Patient Society Village application form

The Patient Society Village (also called Patient Village) is an area reserved within our Congresses for patient organisation representatives to meet with delegates and other patient organisation representatives to discuss relevant topics and issues pertaining to their organisation’s missions, goals and achievements. Launched in 2015 during the Annual Congress in Copenhagen and continued in 2016 in Vienna, the EADV is evolving and growing the Patient Village concept for the 2017 Congress in Geneva.

In Geneva, we are taking our previous years’ experience to grow on the strength of our experience.

The Patient Society Village will take place on Friday, 15 September 2017. This year it will take place for just one day. The purpose of this is to diminish the travel expenses for our Patient Associations, while maximising the opportunity for interactions with delegates.

  • Scheduled on a very well-attended day of the Congress
  • Located in a high-traffic are outside of the biggest session rooms
  • Offering coffee breaks in the Patient Society Village for congress delegates


Patient Village 2016


To improve the dermatological health paradigm, there must be a fundamental collaborative partnership between the patient and the key healthcare providers.

The European Academy of Dermatology and Venereology (EADV) actively works to advance this theme with the patient community and strengthen productive relationships with patient leaders to explore how different roles and perspectives can be joined together to extend dermatological support.

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